"I'm not crazy, I'm just insane."

Weight Gain on SSRI’s

Aside

Ahem…


I do not know what to say. So much. In fact I am afraid to begin. I suppose today I shall approach things in an “update” sort of way. Just to get it out so that I can start smearing brain garbage all over the place.

I honestly have to look and see what my last post was… I have no idea where I’ve even been.

Ok…

So…

I was sick. Like really sick. For ever. EVER. It’s all a blur and I yet I still feel deeply within my still-recovering innerds that I am a seriously huge dick for even calling myself “sick” at all. People have cancer. Since my last post, more people. Just now… more people. I found out a few weeks ago that my Paw Paw has it. Extensive Multiple Myeloma. Yeah… google it. I don’t even know.

Beep Beep Beep.

Finished my taper off of Seroquel for the SECOND horrible time in October-ish. The WD during that three month dwindle were horrendeous.

When you taper you think that the taper is it. You believe, because you have to, that the taper is the withdrawal. That your last day, your last half of a half of a pill is it. It feels like victory. I had never tapered back into myself entirely at any point over the past few years. I’d gone from one thing to another, mostly all related poisons, and never just been… well… naked. When I quit the Seroquel I also quit Abilify cold turkey. I went from “withdrawals” back to the pits of hell that are the Discontinuation Syndrome that I preach and preach about. CRACkK-FUkKiNG-HEAD. Twitching, itching, awake for weeks. Miserable. I ticked, I chewed my face to pieces, I paced, hyperventilated, cried in the dark. The whole nine yards. During this, my body, which was already caught in a downward spiral, gave up. I was depressed, sick, and totally over it.

 

Things I thought I knew how to manage: Bipolar, Schizo, ADHD… yada yada, Diabetic, Fibromyalgia, G.E.R.D., RLS, and just basically feeling like shit all day every day.

Chronic, seemingly incurable, Sinusitis and Bronchitis. Now going through withdrawal and not sleeping.

 

Needless to say, all of these things, and the attempt to tackle all of these things individually, were killing me. I gave up on my brain. Trying to fix my brain was killing my body. I’d like to think that my body keeps my soul within its fleshly confines and therefore might be important. It just might be. I figured we should forfeit the sanity and save the body, maybe at least it could be sent for groceries and asked to do a dance or two for someone’s entertainment and serve a purpose before it got struck by lightening. IDK. If nothing else, I like to think that I would make a mighty sexy chalk outline on a sidewalk someday and I may never survive long enough to get somewhere with sidewalks if I didn’t at least try to make it.

 

Funny how someone who so often ponders her own demise could even care about making it, but I have some pretty rad kids to chase around and it takes a pulse to do that. Nobody can chase my kids like me. Fact.

 

That all said, I fired my Doctor, middle finger in the air, when he offered me yet another round of antibiotics to “fix my wagon.” Really? “Chronic Sinusitis” is what he insisted. This was, of course, because my sinuses APPEARED to be draining, which was really just a result of my desperately weeping in his office begging him to figure out why I’d spent the past two years coughing until my ribs would break and in what I felt to be hell. Despite my asking him over and over to stop seeing me as a runny nose and a cough and acknowledge that my BODY is sick, that I, AMBER, am sick, that it is not JUST sinuses and to please, for the love of God, TRY to figure it out, the man sent me away with another “gorilla-cillin” shot in the ass, some prednisone, and another round of amoxicillin to throw on top of the six previous rounds of oral antibiotics, three rounds of steroids, and three other shots of penicillin. I could not take it anymore. I’d been in bed for two months. I was sick of being sick of being sick.

 

I called a new doctor, an internal medicine doctor. Before I could make that appointment on Jan 9th, I officially, completely finished throwing my back out on New Years Eve by walking across a 20 foot lawn and got to make a few trips to a few ER’s and ride in an ambulance… by the way, ER will ignore the SHIT out of you until you are healed by Jesus in the waiting room. They will also completely ignore the fact that you are in more pain than natural childbirth and send you home with a prescription for Alieve and discharge papers stating “arthritis pain” in a 31 year old who was paralyzed from the waist down for seven hours and screaming in agony alone in the waiting room while the girl with the recurring UTI who knows all the security guards gets hooked up with free Dr. Pepper. By the time I made it to my previously scheduled appointment with the Internal Med. Dr. I was homicidal.

 

SO. The new Dr. is wonderful. He immediately referred me to a Sinus Specialist but said that he felt it was definitely not “only” a sinus/respiratory issue. He totally acknowledged that I have Fibromyalgia and that it was being aggravated by all of the infection that was showing up in my blood-work. The Sinus Specialist figured out by looking at my vocal chords that I was not being diagnosed with the type of Reflux that I really had and that it was the culprit for my sinus issues and the bronchitis that kept turning into pneumonia because of my not being properly treated for infection. A trip to a wonderful Gastroenterologist and an endoscopic surgery later and we find out I have both G.E.R.D. and L.P.R.D. as well as several ulcers. So… once those things are under control, guess what, it’s a miracle. Chiropractor three times a week, tons of omeprezole, lots of other fun stuff… anyway I freaking survived. I. AM. ALIVE.

 

Now… back to the other junk. The Discontinuation Whatever-it-is lasted until the first week of March. I have been off of Adderall for about a month as well, which was another fun time. I was taking 90mg a day. I am now officially only taking birth control (which may also be jacking with my little body) and Requip to help with my RLS. Back to not sleeping for days, hearing invisible wind-chimes, watching little gremlins dart around the house… but feeling better on the outside for a change.

 

Moral of the story is, the day I started trying to “fix” me is the day I started to kill myself. I have NO idea what advice to give in this matter other than to trust yourself. If you start taking medication and are hearing your doctor say “you have to weigh the benefits of the medication over the side effects and decide whether or not it’s worth it” and you feel like you are dying… don’t overlook it. Don’t be so desperate to “fix” yourself and let yourself fall apart because you are ignoring the obvious. If your body is sick, your mind will follow suit and all the Seroquel in the world will never fix the fact that you are simply killing yourself by accident and not on purpose. I don’t blame Seroquel… although when I began taking it the drug warnings about blood-sugar were not listed and I have to say that I would have rather lived an insomniac’s life than a diabetic insomniac’s life… in fact, I do blame it, but that’s a story for another day. More than anything, I don’t blame, I am just pissed in general. Don’t be pissed in general, kids. Don’t let someone that has spent 45 minutes watching a clock and barely listening to you give you something that can/will possibly change your life entirely and just put it in your mouth like a fucking sheep. I feel like psychiatry in general feeds off of desperation. Nobody goes to a psychiatrist because they aren’t feeling out of options. No one calls and makes an appointment and utters the words “something is wrong with me” that is not desperate. I can only beg of anyone who has a shred of hope in life, be so careful with yourself. Be so so careful.


Side Effects, things they expect you to figure out on your own.


Before anyone spouts off about my discouraging people from taking medications that they may need, let me say this. If you are reading this right now, I’m guessing that you have the ability to make choices, like how you chose to read this blog. Since that’s the case, you are fully capable of deciding whether or not to take the little pills for yourself. I’m not your Mom, I’m not a Dr., and I don’t really care if you agree. If you want to know factual information about the side effects that you may not be aware of, please feel free to check this out. If you are going to leave some shitty comment about not influencing people to disregard medical advice, it’s probably best you go and google puppies or recipes or something because I’m pretty pissed off about being pressured to take medication right now and I don’t really have anything nice to say. I’m an asshole… but it’s ok, it’s a side effect.

*ANYTHING IN RED (AND THEN SOME) IS ON MY LIST OF “STUFF I HAVE BEEN LUCKY ENOUGH TO EXPERIENCE.”

ANTIDEPRESSANTS: (TRAZODONE, WHILE DOWN-PLAYED AS A SLEEP AID, IS AN ANTIDEPRESSANT)

Antidepressants can make some people feel immediately worse—more depressed than before. Or they can suffer from sudden anxiety, aggressiveness, or become suicidal. In some cases antidepressants can induce a complete swing from depression to wild mania.

Antidepressant drugs are, in their own way, as dangerous as cocaine, heroin and other street drugs:

  • Antidepressants can lead to dependence
  • Antidepressants can be difficult and even dangerous to stop taking
  • Antidepressants can cause side effects that ruin lives, or even kill you
  • Antidepressants can lead to suicide, especially in the young
  • Antidepressants have been linked to extreme mania, including violent acts against others.
  • Pyromania: A compulsion to start fires
  • Kleptomania: A compulsion to embezzle, shoplift, commit robberies
  • Dipsomania: An uncontrollable urge to drink alcohol
  • Nymphomania and erotomania: Sexual compulsions—a pathologic preoccupation with sexual fantasies or activities.
  • Agitation
  • Akathisia (severe restlessness)
  • Anxiety
  • Indigestion
  • Excessive urination
  • Headache/migraine
  • Hypomania (pervasive elevated or irritable mood)
  • Nausea
  • Vomiting
 
  • Confusion
  • Decreased Libido
  • Dependence
  • Irritability
  • Insomnia (isn’t that why they put me ON Trazodone?)
  • Impulsivity
  • Low blood pressure
  • Rash
  • Weight gain (60 lbs!!!)

 

 
  • Diarrhea
  • Dizziness
  • Dry mouth (which causes cavities)
  • Muscle pain
  • Mania (extremely elevated mood, unusual thought patterns and psychosis)
  • Panic attacks
  • Suicidal thoughts
  • Tremor (which they’ll put you on another medication for)
  • Weight loss

 *THE GREAT NEWS? IF YOU TRY AND STOP TAKING THEM, EVEN IF YOU TAPER, YOU RUN THE RISK OF GOING THROUGH DISCONTINUATION SYNDROME LIKE ME! https://donotshakethebaby.wordpress.com/2011/04/28/lets-talk-about-trazodone/

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ANTIPSYCHOTICS: (ABILIFY, SEROQUEL)

(This is straight off of www.drugdetox.org, by the way) Antipsychotics deaden a person’s perceptions of pleasure, severely reducing feelings of desire, thoughtfulness, motivation, and the ability to be surprised or amazed. At one time, some of the earlier antipsychotics were described as causing a ‘chemical lobotomy’ or were used as ‘chemical straightjackets’. Seriously, I feel like a functioning human body, shit to do, places to go, bills to pay, but not an ounce of emotion. Nothing makes me happy, sad, I have no rhythm, no desire to paint anymore. Just breathe and buy groceries. The word ‘zombie’ is often used to describe this side effect of many antipsychotics.

Because of the seriousness of these and many other side effects, many people stop taking them — two-thirds of people in controlled drug trials — due at least in part to the adverse effects. Some side effects have even been seen to appear long after a person has stopped taking the drug, effects that last for years, or for life. This suggests that some antipsychotics cause permanent, irreversible brain damage. DID YOU FREAKING HEAR THAT?

  • Diabetes (Uh, yeah. NO family history, never had gestational diabetes, low carb diet, active lifestyle, and I turn up with Diabetes. Interesting.)
  • Pancreatitis—inflammation of the pancreas
  • Serious weight gain or weight loss
    SIXTY pounds. Eating like I always have. Suddenly unable to work out due to constant exhaustion and overheating. Gained weight in places I’ve never even had chub before.
  • Agranulocytosis—a dangerous decrease in white blood cells
  • Seizures
  • Parkinsonism—rigidity and tremors
    I got tremors so badly that I couldn’t hold a fork. They put me on MORE medication, PROPRANOLOL:  http://www.drugs.com/propranolol.html

 

  • Acute dystonias — movement disorder with sustained muscle contractions, twisting and repetitive movements or abnormal postures (Big time, I can’t sit still or straight. Constantly writhing around, twisting my neck, body, and hips around. Can  not control it.)
  • Hyperprolactinaemia—abnormally-high levels of prolactin in the blood
    • Prolactin is a hormone associated with lactation. This side effect may cause spontaneous flow of breast milk, disruptions in normal menstrual cycles, hypogonadism, infertility, and erectile dysfunction in men
  • Tardive dyskinesia (It gets worse the longer I sit or stand in one place)
    • Tardive means the condition continues, or even appears for the first time, after the drugs are no longer being taken.
    • Dyskinesia is involuntary, uncontrollable and repetitive movements.
  • Tardive akathisia
    • Akathisia is an eerie, uncontrollable restlessness, ranging from a feeling of inner disquiet, often localized in the muscles, to an inability to sit still or lie quietly.
  • Tardive dysphrenia and psychoses — any number and any kind of psychosis. In other words, a medication for psychosis causes psychosis, even after stopping taking it.
  • Tardive tourettism—a tic disorder that closely mimics Tourette Syndrome.
    • Tourettes is characterized by the presence of multiple physical (motor) tics and at least one vocal (phonic) tic. This one got ridiculous, they put me on Benztropine to control it. http://www.drugs.com/mtm/benztropine.html

 

       
  • Tachycardia — accelerated heart rates
    (My resting heartrate is around 155bpm)
  • Hypotension — dangerously low blood pressure
  • Impotence
  • Lethargy
  • Dysphoria—sadness and depression
  • Tooth decay—primarily from the ‘dry mouth’ effect of antipsychotics
  • Intense dreams or nightmares
  • Sudden dangerous rise in body temperature
    (Risking heat stroke with nearly any activity, would go into early phases of heat stroke from pushing a grocery cart.)
  • Sudden death in Alzheimer’s patients
  • Central nervous system damage— associated with irreversible tardive akathisia and/or tardive dysphrenia (Oh boy, I can’t wait to see what’s permanent!)

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ABILIFY: http://www.drugdetox.org/druginfo/abilify.php

SIDE EFFECTS (THIS IS THE COOL SHIT THAT HAPPENS TO YOU WHILE YOU ARE TAKING THIS MEDICATION… FOR DEPRESSION)

The following information is taken from the Abilify label:

  • a syndrome of potentially irreversible, involuntary, dyskinetic movements
  • abdominal discomfort
  • aggression
  • aggressiveness
  • agitation
  • akathisia (psychomotor
  • restlessness)
  • akinesia
  • alopecia
  • amenorrhea
  • anger
  • angina pectoris
  • angioedema
  • anorexia
  • anorgasmia
  • anxiety
  • arthralgia
  • aspiration
  • asthenia
  • atrial fibrillation
  • atrial flutter
  • atrioventricular block
  • blood bilirubin increased
  • blood creatinine increased
  • blood glucose increased
  • blood insulin increased
  • blood insulin increased
  • blood lactate dehydrogenase increased
  • blood prolactin increased
  • blood urea increased
  • blurred vision
  • bradycardia
  • bradykinesia
  • breast pain
  • carbohydrate tolerance decreased
  • cardiopulmonary failure
  • cardio-respiratory arrest
  • catatonia
  • cerebrovascular accident
  • chest pain
  • choreoathetosis
  • cogwheel rigidity
  • completed suicide
  • constipation
  • coordination abnormal
  • cough
  • creatine phosphokinase increased
  • death
  • decreased appetite
  • delirium
  • diabetes mellitus
  • diabetes mellitus non-insulin-dependent
  • diabetic ketoacidosis
  • diplopia
  • dizziness
  • dry mouth
  • dyspepsia
  • dyspnea
  • dystonia
  • electrocardiogram qt prolonged
  • erectile dysfunction
  • esophageal dysmotility
 
  • esophagitis
  • extrapyramidal disorder
  • extrasystoles
  • eyelid edema
  • face edema
  • fatalities
  • fatigue
  • feeling jittery
  • gamma-glutamyl transferase
  • increased
  • gastroesophageal reflux disease
  • glucose tolerance impaired
  • glucose urine present
  • glycosuria
  • glycosylated hemoglobin increased
  • grand mal convulsion
  • gynaecomastia
  • headache
  • heat stroke
  • hepatic enzyme increased
  • hepatitis
  • hirsutism
  • homicidal ideation
  • hostility
  • hyperglycemia
  • hyperhydrosis
  • hyperlipidemia
  • hyperosmolar coma
  • hypersensitivity
  • hypertension
  • hypertonia
  • hypoglycemia
  • hypokalemia
  • hypokinesia
  • hypomania
  • hyponatremia
  • hypotension
  • hypothermia
  • hypotonia
  • impulsivity
  • increased appetite
  • insomnia
  • intentional self injury
  • irritability
  • jaundice
  • ketoacidosis
  • leukopenia
  • libido increased
  • loss of libido
  • mania
  • memory impairment
  • menstruation irregular
  • mobility decreased
  • muscle rigidity
  • muscle spasms
  • muscle tightness
  • muscular weakness
  • musculoskeletal stiffness
  • myalgia
  • myocardial infarction
  • myocardial ischemia
  • myoclonus
 
  • nasal congestion
  • nasopharyngitis
  • nausea
  • Neuroleptic Malignant Syndrome (NMS)
  • neutropenia
  • nocturia
  • orthostatic hypotension
  • pain
  • pain in extremity
  • palpitations
  • pancreatitis
  • panic attacks
  • parkinsonism
  • peripheral edema
  • pharyngolaryngeal pain
  • photophobia
  • photopsia
  • photosensitivity reaction
  • pneumonia aspiration
  • polydipsia
  • polyuria
  • priapism
  • pruritus
  • pyrexia
  • rash
  • restlessness
  • rhabdomyolysis
  • salivary hypersecretion
  • sedation
  • seizures/convulsions
  • self mutilation
  • sinus tachycardia
  • sleep talking
  • sleep walking
  • somnolence
  • speech disorder
  • stomach discomfort
  • stroke
  • suicidal ideation and behavior
  • suicide attempt
  • supraventricular tachycardia
  • swollen tongue
  • tachycardia
  • tardive dyskinesia
  • thirst
  • thrombocytopenia
  • tic
  • tongue dry
  • tongue spasm
  • toothache
  • transient ischemic attack
  • tremor
  • unusual changes in behavior
  • upper respiratory tract infection
  • urinary retention
  • urticaria
  • ventricular tachycardia
  • vomiting
  • weight decreased
  • weight increased
  • worsening of their depression

SEROQUEL: http://www.drugdetox.org/druginfo/seroquel.php

SIDE EFFECTS

The following information is taken from the Seroquel label:

  • abdomen enlarged
  • abdominal pain
  • abnormal dreams
  • abnormal ejaculation
  • abnormal gait
  • abnormal vision
  • abnormality of accommodation
  • acne
  • acute kidney failure
  • aggressiveness
  • agitation
  • akathisia (psychomotor restlessness)
  • alcohol intolerance
  • alkaline phosphatase increased
  • amblyopia
  • amenorrhea
  • amnesia
  • anemia
  • angina pectoris
  • anorexia
  • anxiety
  • apathy
  • aphasia
  • arthralgia
  • arthritis
  • asthenia
  • asthma
  • ataxia
  • atrial fibrillation
  • AV block first degree
  • back pain
  • blepharitis
  • bone pain
  • bradycardia
  • bruxism
  • buccoglossal syndrome
  • bundle branch block
  • catatonic reaction
  • cerebral ischemia
  • cerebrovascular accident
  • chills
  • choreoathetosis
  • confusion
  • congestive heart failure
  • conjunctivitis
  • constipation
  • contact dermatitis
  • cough increased
  • creatinine increased
  • cyanosis
  • cystitis
  • deafness
  • deep thrombophlebitis
  • dehydration
  • delirium
  • delusions
  • depersonalization
  • diabetes mellitus
  • dizziness
  • dry eyes
  • dry mouth
  • dysarthria
  • dyskinesia
  • dysmenorrhea
  • dyspepsia
  • dysphagia
  • dyspnea
  • dysuria
  • ecchymosis
  • eczema
  • emotional lability
  • eosinophilia
  • epistaxis
 
  • euphoria
  • exfoliative dermatitis
  • eye pain
  • face edema
  • fatigue
  • fecal incontinence
  • female lactation
  • fever
  • flatulence
  • flu syndrome
  • gamma glutamyl transpeptidase increased
  • gastritis
  • gastroenteritis
  • gastroesophageal reflux
  • gingivitis
  • glaucoma
  • glossitis
  • glycosuria
  • gout
  • gum hemorrhage
  • gynecomastia
  • hallucinations
  • hand edema
  • headache
  • hematemesis
  • hemiplegia
  • hemolysis
  • hemorrhoids
  • hiccup
  • hostility
  • hyperglycemia
  • hyperkinesia
  • hyperlipemia,
  • hyperprolactinemia
  • hyperthyroidism
  • hypertonia
  • hyperventilation
  • hypochromic anemia
  • hypoglycemia
  • hypokalemia
  • hypomania
  • hypothyroidism
  • impotence
  • impulsivity
  • incoordination
  • increased appetite
  • increased QRS duration
  • increased salivation
  • insomnia
  • intestinal obstruction
  • involuntary movements
  • irregular pulse
  • irritability
  • leg cramps
  • lethargy
  • leucopenia
  • leucorrhea
  • leukocytosis
  • libido decreased
  • libido increased
  • lymphadenopathy
  • maculopapular rash
  • malaise
  • mania
  • manic reaction
  • melena
  • metrorrhagia
  • migraine
  • moniliasis
  • mouth ulceration
  • myasthenia
  • myoclonus
  • nasal congestion
 
  • neck pain
  • neuralgia
  • neuroleptic malignant syndrome (nms)
  • neutropenia
  • nocturia
  • orchitis
  • orthostatic hypotension
  • pain
  • palpitation
  • pancreatitis
  • panic attacks
  • paranoid reaction
  • pathological fracture
  • pelvic pain
  • peripheral edema
  • pharyngitis
  • photosensitivity reaction
  • pneumonia
  • polyuria
  • postural hypotension
  • pruritus
  • psoriasis
  • psychosis
  • QT interval prolonged
  • rash
  • rectal hemorrhage
  • rhinitis
  • seborrhea
  • sedation
  • seizures
  • SGOT increased
  • SGPT increased
  • skin discoloration
  • skin ulcer
  • somnolence
  • ST abnormality
  • ST elevated
  • stomatitis
  • stupor
  • stuttering
  • subdural hematoma
  • suicide attempt
  • sweating
  • syncope
  • T wave abnormality
  • T wave flattening
  • T wave inversion
  • tachycardia
  • tardive dyskinesia
  • taste perversion
  • thinking abnormal
  • thirst
  • thrombocytopenia
  • thrombophlebitis
  • tinnitus
  • tongue edema
  • tooth caries
  • tremor
  • twitching
  • urinary frequency
  • urinary incontinence
  • urinary retention
  • vaginal hemorrhage
  • vaginal moniliasis
  • vaginitis
  • vasodilatation
  • vertigo
  • vomiting
  • vulvovaginitis
  • water intoxication
  • weight gain
  • weight loss

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The bottom line is this: it is completely between you and your Dr. what you decide is worth putting into your body. I am someone who digs around, reads the pamphlets, and does my homework as a general rule. Even so, I placed a considerable amount of blind faith in that “2%” I kept hearing when it came to side effects. Also, the pamphlets that come with your meds don’t list everything you are putting yourself at risk for, only the side effects with a higher frequency of occurence. What this means, or at least in my case, is that I very eagerly put something into my body with the impression that my best interest was at heart and not considering the possibility of there being financial motivation behind keeping me in search of stability. My plight through the dark dwellings of psychiatric drugs was embarked on with sleep in mind. I ended up taking the above mentioned and several more prescriptions looking for “normal” because it was the achievement of “normal” and “level” that would then beget the sleep, or so I was told. Here I am, years later, bitter and exhausted, still not sleeping, and having experienced or am still experiencing (possibly permanently) so many side effects that I am afraid to count. I highlighted everything that I am aware of, there are certainly many things that I can’t even know. On top of the discomforts, the pain, the emotional roller-coaster ride, and the toll it has taken on my relationships, I also developed Diabetes as a result of these medications and will spend the rest of my life managing it. I am but one bitter little soul, sick of the bullshit, the “handling” to make a quick buck, being treated like a number, and mostly mad at myself for being naive and hopeful that there was some easy solution to my problems. I might not be the best messenger for mental health, but I am honest, and I honestly suggest, before you fill that script, that you consider all of the things that you may be putting your body through and decide if it is worth it to you. Do not let someone convince you that you need medication when they do not even know you. If you visit a psychiatrist, and in one session they are already whipping out the triplicate, I beg you, be patient, ask them to come back a few times, forge a relationship, make sure you feel that they understand you more than they could possibly have assumed in the 45 minutes that they spent with you. It is a cycle that is not easily broken, I am going through hell getting off of these medications and doing so at the risk of my sanity, but for the sake of my health. It’s a tough call, but I’m betting I’m not nearly as crazy as I paid them to tell me I am.


I thought I wanted to be NORMAL. I changed my mind.


For the past three months I’ve committed myself  slowly, cautiously, and with great determination, to weaning myself off of antipsychotics. Many reasons compiled to inspire this decision. Yes, I’ve “gone off meds” before, but never ever all of them. I’ve always maintained some level of medication, even in a small dose, to keep from completely going off the deep end, as my Dr. would warn. This has been a rough few years. Searching for the answers to questions that don’t have any. I’ve been at the mercy of my Psychiatrist, my pharmacy, my insurance company, and the deep-seated fear that I am doomed to spend the rest of my life choosing between medication and sleep.

That’s how this all started. Sleep. I have never slept. My entire life, I can never remember being able to quiet my mind and just sleep. I  would lay awake all night, even as a child, and think or wait until the wee hours of the morning. A lot of this stemmed from childhood abuse, late night callings from my lonesome step-father, the Post Traumatic Stress Disorder that followed the suicide of my Dad and watching my Mom be electrocuted at my feet at age nine, and a complete inability to feel safe enough to close my eyes. Needless to say, my childhood bred the insomnia that would plague my entire life. I was in my late twenties when an incident with my step-father, an unexpected phone call intended to clear his own conscience and explain away his choices as acts of love, would trigger a complete breakdown. Years of insomnia, paired with the stresses of managing my own large family, a job, and my second rocky marriage, all while silently boxing away my issues and successfully hiding my schizophrenia from the world, would eventually catch up to me. I went to therapy for the first time. I just needed to unload. I needed to hear that I wasn’t insane, simply dealing with my cards and looking for the same happiness that we all are. I set my mind on honesty. I would just tell this stranger about it all. I would tell her how I am afraid that I am not a good enough mother, a good enough wife, not really capable of doing all of the things that I pretend to be able to do. I wouldn’t mention the dark things, the noises, the darkness I saw around me, only the daily stresses of being a wife and mother of five who couldn’t sleep. I’d do this, and maybe they’d give me some Ambien and life would get better. That was my plan.

Needless to say, the hour spent sitting on a couch, spilling my guts haphazardly to someone I’d only just met, would quickly turn from “I feel inadequate as a parent” and describing my anxiety and how I rarely got more than two hours of sleep a night, sometimes none at all, into a tear-filled rant about my step-father and a childhood full of death, torment, and sexuality. None of these things had I meant to reveal. I attempted to justify most of it and keep moving, tried to focus on the bigger issue, that whatever’s happened had happened, but that all I wanted was to sleep. I still kept tucked away the parts that would likely land me in an institution, the things I’d never reveal in fear of being found out, to be called crazy. A few dirty words were mentioned. Personality Disorder, Bipolar Disorder, PTSD, OCD… things of this nature. None of them came as a shock, but weren’t the point in my eyes. I didn’t want to hear what it was called; I just wanted to fix it. I just wanted to sleep.

https://donotshakethebaby.wordpress.com/2010/03/12/hypomanic-1-a-m-confessions/

Within days I found myself on another couch, before another stranger. This time was spent quickly asking questions, writing things down, nodding and making assumptions. Not asking IF certain things were happening, but for how long. Not asking if I had mood swings, or if I was suicidal, but for how long could I remember feeling that way. I stuck to the phrase “walking on sunshine with a broken heart” and did not deviate from that being my self-diagnosis. I insisted that I never “get” depressed, that I am just always sad, and happy, all at once. Which is true. There are times when I break, but they are brief, momentary, and usually immediately followed with elation that I’ve got tears to cry at all. I’ve never been submerged in any one state, just thousands of them all at once. A frothy sea of constant emotion, never touching shore. I’d never give up on myself. Why was that so hard to believe? Therapy was so different from psychiatry. I kept hearing “what do you want to do?” and “what should we try?” Looking back that feels like putting a lot of responsibility on someone’s shoulders to make a call in terms of prescriptions that she doesn’t understand. My focus, above all things, was sleep. Just help the noise to die down, help the anxiety to wane long enough that I can just dream once in awhile and defragment. It’s all I wanted. I never thought, not for a second, that I would put my health, my body, and my “self” on the backburner, it never occurred to me that anyone would put something in my hand, after knowing me for 45 minutes, that would destroy 2 1/2 years of my life and leave me permanently damaged.

https://donotshakethebaby.wordpress.com/2010/03/12/verdict/

I’ve pretty much concluded, pill after pill, that there is an underlying motive in keeping me convinced that I need fixing. All I asked for was sleep, what I got was treated for Mixed Bipolar Disorder, OCD, & Schizophrenia before it was all said and done. Apparently if you are manic and psychotic, Ambien and Lunesta can not save you. You must first get yourself under control before mere sleep aids will be of any assistance. Rather than mess around with that sissy stuff at all, let’s kill two birds with twelve stones, let’s get you SO saturated with antipsychotics, antidepressants, and sleeping pills that not only does your brain slow down enough to sleep, you’ll feel lobotomized and completely devoid of emotion! That should fix everything. Oh yeah, and since you can’t STOP taking these medications without severe consequences, we’ll only fill you one month’s worth at a time so that you have no choice but to come back every four weeks or you’ll run out and you are caught up in a good old fashioned hostage situation. Sound good? Oh wait, they don’t say it like that. “Let’s get you evened out.” “Let’s get this depression (wait I said I WASN’T depressed, remember?) under control.” and my favorite “Let’s help you to be a little more normal.”

I blogged away about all of my meds. It’s all there; feel free to take a tour back down memory lane. I thought they helped, I hated them, I quit them, I started them again, but never at any point did I completely detox from these types of medications. I’ve been on everything under the sun, allegedly in the name of sleep, but at the expense of what? My sanity. Yep. I am not only convinced that I’m bananas, incapable of sleeping on my own at all, and trapped perpetually in “the middle,” but I CAN’T REMEMBER ME.

https://donotshakethebaby.wordpress.com/category/abilify/

https://donotshakethebaby.wordpress.com/category/lithium/

https://donotshakethebaby.wordpress.com/category/seroquel/

I suffered through discontinuation syndrome when I cut out Trazodone. In doing so, I started back on Seroquel and Abilify. These two are the culprits for my developing Diabetes. Did anyone warn me of this? What do you think? My Endocrinologist immediately made the connection and told me to get off of Seroquel. He said Abilify was ok, but I am not taking any more chances. I’m done. If I was meant to be bat-shit-crazy, then so be it. I am not going to be miserable anymore so that I can be “normal.” I am not sacrificing the quality of my life, my health, and possibly the amount of time I get to stick around before the crows get me, in the name of pharmaceutical commissions and psychiatric propaganda. Soft Science, they call it. I’m putting my life in the hands of SOFT Science?  I did what I was told, I tapered, I took four months total to get off of Seroquel. I’ve felt like I’ve had the flu, been an emotional wreck, and haven’t slept in three weeks. Five days at a time without sleeping, cool shit like that. It’s been ugly, but I thought, four days ago, when I took my last 50 mg and put the bottle away for good, that it was over. I was relieved. Boy was I wrong.

DETOX. This all started two days ago and gets worse by the second. I feel like clawing my skin off of my body.

ABILIFY WITHDRAWEL SYMPTOMS:

  • anxiety
  • attention deficit hyperactivity
 
  • autism
  • mood swings
 
  • post-partum depression
  • sleep disruption

SEROQUEL WITHDRAWEL SYMPTOMS:

  • agitation
  • anorexia
  • anxiety
  • diarrhea
  • emesis (vomiting)
 
  • insomnia
  • itching
  • muscle pain
  • nausea
 
  • restlessness
  • rhinorrhoea (runny nose)
  • sweating
  • vomiting

I can not stop moving. I feel like I need to be twisted up somehow constantly, can’t sit up straight, keep my head straight, and stop moving my hands or feet or face. I itch as though my skin were going to fall off. Palms, soles of feet, legs, and face are itching UNDER my skin, nothing eases this, and it comes in waves. I am stuttering, twitching, and my muscles are constantly cramping and contorting. I am overcome with intense fatigue randomly, suddenly can’t lift my arms or take another step. My mind is racing; I can’t focus, to the point that when people speak to me I find myself squinting and grimacing trying to process what is being said. Dry heaving, constantly thirsty, and can’t eat. I’ve lost 10lbs in the past week. (Hey, at least something good is happening, ha ha ha.) I feel like a freaking CRACKHEAD. Upon investigation, detox/withdrawel from Seroquel will take AT LEAST 4 weeks. Fuck.Me.Running.

So… as I tap my feet, chew my lips off of my face, sweat, squirm, claw at my palms and the bottoms of my shoeless feet, twist around in my chair, and periodically hyperventilate for no apparent reason, I would like to say that I am proud of myself. I’ve danced around this decision before. I’ve justified my little journey as trying to make myself a better parent, friend, and spouse and be a more stable person for my kids, and I’ve done everything I was told to do with a trusting spirit in the pursuit of “normal.”  I read the books, I took the pills, and I told the truth. I did it all with only slight consideration that I am exactly what God made me to be, and with little regard to His plan for me, although looking back I really felt as though I were keeping that in mind.  It’s not my intention to be a bad influence. If someone’s struggling with things of this nature, and medications help them function, and make them happy, then who in the hell am I to criticize ANYONE for seeking a better life. All I know is that mine was far from improved. Yes, we rearranged my brain, yes it changed things, which felt like relief but was really just change. Sometimes that’s what we need. Change. Something to stand on and see a little better. That’s why I’ve done this, that’s why I did it for the World (and by “the World” I mean “the Googlers of craziness”) to see and judge and decide on their own if they hated who I was becoming more than who I used to be. I blogged my way through this so that anyone who cared enough to look would at least understand that this isn’t some self-absorbed crusade but rather an ongoing battle with self-acceptance. It’s not over yet, I’ve got plenty of shit left to sift through, withdrawals, detox, and then most likely a few months of meltdowns ahead. Your brain doesn’t go back to normal after you’ve done this to yourself. In fact, it may never EVER go back. The odds of being who you were before are slim, and I wish more people knew that before they washed “the answers” down with water and waited to fit in. This may be news to you, but you never will. You will never be normal. Ever. If you aren’t hurting anyone else, and you can keep your hands off of yourself, then you are doing a better job than most of us anyway. How secretly fragile we all are, how intricately composed and easily broken. Take good care of your mind; look for ways to heal the spirit first. Don’t put into another’s hands a creation so exclusive and intentional with expectations to be molded into “normal” with some mass-produced generic assumption and not expect consequences. You might be surprised who’ll miss the “you” that you felt needed fixing.


It was bound to happen.


Things have been, well, I don’t really know what they’ve been. Things are suddenly better, things are good at home, everyone seems much happier and all fighting, bickering, tormenting has ceased. I’ve been sleeping better, still trying to kick Seroquel per Dr.’s orders, and down to 200 mg so I feel confident that if I can just get another script for ambien or lunesta I’ll be able to drop that last little bit and sleep without it. My Dr. is pretty certain that the trazodone and the seroquel were the culprits in kick starting my otherwise unlikely diabetes. If I don’t get off of it, it’ll only continue to sabotage me and keep me overweight which will definitely hinder my shaking this disease nice and early like we are hoping. All of my blood work from my last visit was great, major improvement, and I’d lost 5 more lbs. All’s well I suppose but I can’t help but feel uneasy. I don’t know if it’s my inability to trust “good” or what. Yesterday I made a stop on  my way to run errands after work. The convenient store that I drive past every day, usually it is packed with cars. Not today. Only a few scattered the lot and I should have known something bad was going to happen when I pulled in. I had this feeling, but in I went and who did I nearly walk right into the back of? Daddy. Yeah. I spun on my heels and walked right back out. I don’t know if he saw me. The last time he did he followed me for 13 miles tailgating me down the highway. I was sick to my stomach. Not only had my complete and total fear of my step-father and confrontation sent me reeling into a gut-wrenching anxiety attack, driving as quickly as I could down the highway envisioning him in my rearview, but I also didn’t get my damned energy drink. Double suck. I guess I can’t run from the man forever, but I don’t see why not. I have nothing to say to him, the last thing I want is to come face to face with him in public so that there can be a scene. Quite frankly he scares the shit out of me. I wish it weren’t true but it is.  I have nightmares about the man. It’s inevitable that I’ll run into him, he works where my husband works, he lives in the same area that I work, and that store is like the apex of likelihood to come across the man. The sickest part, he looked skinny and I worried about him. What in the hell is wrong with me?


So… Borderline Type 2 Diabetes.


Not to be dramatic, don’t panic, but I got my blood work back yesterday. Everything is good in terms of Cholesterol, my Thyroid was great, B-12 levels were good. My Vitamin D levels were super-low. Guess that isn’t a surprise since I spend my days at a desk or in the house cleaning. Need to go soak up some sunshine. I need to do a lot of things, who am I kidding? Most importantly, though, was the “why have I gained 50lbs when I don’t eat garbage and try to stay as active as someone with a desk job can stay?” The answer? Side-effects. Anyone privy to my world is well aware that Me + ANYTHING IN THE UNIVERSE = Side Effects. That’s just all there is to it. If it’s a side effect? It’s something I’m dealing with. Well those of you familiar with SSRI’s and Antidepressants on a personal level are aware that High Blood Sugar and the onset of Diabetes when predisposed are not so uncommon side effects to taking these kinds of medications. They make you want to eat. A lot. Having overcome that aspect of the medication, and having dropped the “hungrier” meds, I was shocked to keep gaining weight. To date, I’ve gotten up to 164 from 114lbs. I am currently taking Seroquel and Abilify, both of which are notorious for weight gain and claim high blood sugar as a side-effect. Basically, I haven’t escaped the cycle, but luckily Abilify curbs my appetite.

So I go to my Personal Care Physician and I tell him I am gaining immense amounts of weight and it may or may not be a side effect to my medication but my Psychiatrist  is convinced it’s my eating habits but I exercise good eating habits and can’t seem to convince her of it. Well, to my surprise, he listened. While I was convinced it may be Thyroid related, we ran blood work for everything under the sun and it came back that my Thyroid was “happy.” I know, scientific, right? I’ve been having HELLACIOUS hot flashes on top of my other issues and so exercise has been an uphill, or should I say UPPER hill battle. I get overheated constantly as another fun side effect to the Seroquel.

*Now as I rattle on about these meds making me miserable, you must understand, any good psychiatrist makes the statement, “We have to decide if the benefit of this drug outweighs the side effects you will experience because of it.” In my case, it does. I sleep. Not great, but I sleep at all and that, my friends, is priceless.

So, my Cholesterol looked good, all kinds, and everything besides the Vitamin D deficiency (oh, so many jokes) everything looked great. EXCEPT, my glucose and my insulin levels. The glucose was just above average @ 108. The good level for that is 65-100. My Insulin was at 26, when it should be around 4. Needless to say, not good. However, a relief. Nothing has beeen rougher than the beating up of myself over being a hog and not knowing why. You can say all you want about negative self-talk. Save it for the birds. No really, I know this bird? He’s really an asshole. Save that for him.

In the meantime, I am making peace with an actual medical condition. I was told I was borderline Type 2 Diabetic. Yep, the fat one. That’s fine, because I didn’t GET that way by not taking care of myself. That’s something I can honestly say. It feels good to say it. I’m hard enough on myself, my self-esteem has really taken a hit on this one. I know beauty is only skin deep but so are stretch marks. Tell that to the girl on the inside. I’m not superficial, but I am miserable. I sweat. I SWEAT! I’ve never been the gal to sweat. Even in the heat, I glistened. Not so much carrying around an extra 50#. So many other things, just being exhausted, not being able to work out, my ankles and knees are killing me. I’m just not built for this! Now that I can stop blaming myself and get to the bottom of it, I’m on this. I’ve got this.

They put me on Metaformin HCL. 1000mg twice a day. It makes me sick as hell. I was told it would do that for about a week and then I’ll be ok. Let’s hope the week flies by. Among all of the other fun drugs I’m on, maybe it will do the trick. I am told not to touch carbs. That eating something bad is like eating 10X whatever it is that I am really putting in my mouth. Good to know. I’m going to have to be even more hardcore than I already have been, but I can handle this, like everything else on my plate. I have got this. I’m going to make insulin my bitch.


Is it asking too much?


I just want to be myself when I wake up.

I want to look in the mirror and not wonder if I am pretty enough.

I want to put on my clothes and not feel like I’m fat.

I want to get up every morning and put on my “Amber” hat.

I haven’t been myself in so many years

I’ve already forgotten the hopes and the fears

The birthdays the thursdays, they all brought me here.

A girl with amnesia, who can’t tell you here name.

I have forgotten the books, the music, the beer.

No idea what kind of clothes I would wear.

I can’t pick them out, I can’ t tell you the words,

I forgot what my face was without you to judge.

I can’t fucking wait to be me again, whoever the hell that is.


Booty-gate 2010


Ok kids, stuck to my guns and worked out again last night, two more miles on incline, high resistance, no slowing down. Ate healthy for dinner, banana and cheese for breakfast and chicken noodle soup for lunch… so far so good. Weighed in last night and I’ve GAINED a pound. Not going to let it get to me. Surely it’s muscle. My legs are on fire, I can barely walk today. Been constantly nauseated for the past few days. Most likely it’s nerves getting the best of me. I don’t really feel very good, honestly. I”m hoping this will all pass as I get back into the groove. My hopes of being skinny by Saturday are, of course, ridiculous, but I’m praying. By skinny, I mean my tummy being gone, the rest will follow. I just don’t want to look pregnant in a dress, that’s all I ask. Going to see the Dr. tomorrow. I’m all distraught over it. I’ll buck up somehow and face the music. The bottom line is that while I feel shitty RIGHT NOW, overall I feel much better now that the meds are fading out of my system and I can use my brain again. If this nausea would go away I’d be a happy camper. I suspect it has everything to do with my anxiety over tomorrow. Unless I’m getting sick. Either way, it fucking sucks. I’m trying to be positive, I really am, and I really have every reason to be. I just hate feeling icky. Not to be confused with “bad mood.” Just icky. I’ll live.


Chubby-blubbering.


Allow me to bellow and guffaw for just a moment. I’m fat. My face is breaking out. I miss Vanilla Coke. Ok, I’m done.

Prrrrrrretty sure I have PMS…. yes… I just said that on national television. Not something I would normally divulge. It’s getting to “that point” in the show where my meds are almost completely out of my system so we are nearing the danger zone. Just in time for my hormones to be bonkers, we have on our plate a potential melt down. I would say I probably had that meltdown yesterday except it wasn’t near big enough to suffice. Surely I have a bigger one in there but we’ll save it for Friday night. Why then, you ask? Because I am fat. You see, when you have babies, unless you are a lucky bitch and I hate you, your stomach is never the same. When you gain weight it heads straight for the kangaroo pouch like a magnet. Not somewhere cool like the boobs, unless you are the afore-mentioned lucky bitch, and usually the thighs in uneven distribution. When you’ve had TWINS it’s even cooler because you have an extra awesome kangaroo pouch, that turns into weird lines across your stomach if you ever DO get skinny, but an even MORE noticeable line of fatness if you happen to be in MY not-so-skinny shoes. These are all wonderful things that I am blessed to know. Yes, ok, this rant is a tad superficial, but it’s how I feel today. This all boils down to my complete and utter horror that our company Christmas party is Saturday. I have 10 lbs to lose before then, so help me. I tried on the only two dresses that I have that would really suit said event and all I can see is my stomach in them. A girdle you say? It shows, I already tried. So as dooms day approaches I have started working out again… again. Except THIS “this time” I plan to keep working out beyond Saturday. We all say that, but when you are of the mental/emotional persuasion as I, it’s almost mandatory. In fact, according to my Dr., it IS mandatory for my sanity. So yesterday I ran 2 miles, or should I say last night, and this morning I got up and worked out despite my total soreness. I ate a banana for breakfast and a salad for lunch. Peanut butter and crackers for a snack and NO sodas. I miss them terribly. I’m climbing up a rocky incline with this since I’ve been on an eating rampage since the scale did confirm my having gained 20 lbs and I threw my hands up in the air. I’ve only peed 642 times today, that’s all. Water, so good for you but so annoying. All whining aside, I’m pretty proud of myself. Of course I won’t be so upbeat when I go shopping after work today to find a dress that fits and pray I look better in it by Saturday than I do in the dressing room. We’ll see how it turns out. With that and my Dr.’s appointment looming, I’m not exactly skipping around whistling as it is. I just have to be optimistic, I guess. Oh, and stay away from bacon.